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Dup15q Australia Ltd is an authorised charity governed by the Australian Charity & Not-for-Profits Commission (ACNC). Formed in 2016 our mission is to:

  • create awareness of Chromosome 15q Duplication Syndrome (Dup15q) in Australia

  • advocate for individuals and their families

  • be a source of information and support for individuals and their families

  • provide an outlet for families to connect with other families

  • promote knowledge of the condition within the medical fraternity

  • facilitate bi-annual national family conferences

  • raise funds to assist with research into the condition and possible therapeutic treatments

  • establish dedicated clinics for the provision of treatment and advice to individuals and families.




The journey for newly diagnosed individuals and their families is difficult. It is an emotional roller coaster of uncertainty, fear, grief and loneliness. We hope to provide existing and newly diagnosed families with the relative comfort that comes from knowing they are not alone in their journey.

There are Dup15q families located all over Australia and we encourage all newly diagnosed families to make contact with us on our Contact Us page. You can also find us at Once you have connected with us we will add you to our Families Only page where you can connect directly with other families around Australia.

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